In 2014, our 4yr old son Cooper, was diagnosed with an inoperable brain tumour called DIPG (Diffuse Intrinsic Pontine Glioma).
To begin this is what we know about DIPG
Every year up to 10 children are diagnosed in Australia.
Mainly strikes children between the ages of 5-9 years of age.
Average survival is 9-10 months from the day of diagnosis.
DIPG is situated within the brain that affects all vital functions. It affects a child’s ability to walk, talk, swallow, eyesight, balance, and eventually their ability to breathe.
To be told that Cooper had brain cancer was unbearable, but to then learn that there is no known cure was soul-destroying.
Sadly, even though Cooper surpassed Dr’s expectations, by living for 21 months longer than expected, Cooper passed away in my arms with his dad by his side on July 25th, 2015. He was 6 years old.
That blessing of extra time, extra moments of memories to cherish, was all Cooper’s doing. His tenacity to keep going, to keep fighting, to “Never Ever Give Up” is what made Cooper who he was. He laughed, he loved, but most importantly he LIVED for the time that we had.
This great loss, started my mission to raise awareness and funding into finding the cure for brain cancer. Most importantly for me DIPG. Last year we held our first Walk4BrainCancer raising funds for the Cure Brain Cancer Foundation, raising a staggering $27, 701
This year we are walking again.
The walk will still include a walkthrough, Cooper’s Walk, but this year at a new location of starting at Bill Fraser Park, The Esplanade, Torquay on Saturday 25th November 2017. With the walk to commence at 8:00am.
Brain Cancer Foundation merchandise will be available to purchase along with food and drinks. We will have raffles and a balloon release in memory of Cooper and loved ones, that will also begin the walk, with the walk to finish about 11:00am.
If you would love to join us and help find the cure for brain cancer than please register to walk with us on the link below. www.walk4braincancer.com.au
All funds from your registration go towards our walk total which today stands at $2964
Written by Amanda Christensen